First time at CHUM? Need help finding your way to the neurology department? Here are resources to guide you and help you better prepare for your appointment.
Below you'll find a series of links to organizations, services and resources that our patients have found helpful in understanding your condition. If you have an additional resource that you feel would be helpful to others, please contact us and we'll add it to our list below.
Epilepsy clinics in Quebec
- CHUM Epilepsy Clinic launch
The Epilepsy Clinic at CHUM caters to adult patients. This French-speaking institution is located in downtown Montreal.
- CHU Sainte-Justine Epilepsy Clinic launch
The epilepsy clinic at CHU Sainte-Justine (French-speaking facility) is open to all pediatric patients (under 18).
- Epilepsy clinic at the CHU de Québec launch
The CHU de Québec epilepsy clinic is for all pediatric patients (under 18) in Quebec City.
- Epilepsy clinic at the Montreal Children’s Hospital launch
The Neurology Department at the Montreal Children's Hospital is a bilingual facility for pediatric patients (under 18 years of age).
- Montreal Neurological Institute-Hospital launch
More resources and informations on epilepsy
- TÉCUM at the CHUM launch
You can also find the TÉCUM program on the CHUM website.
- TÉCUM at the CHU Sainte-Justine launch
You can also find the TÉCUM program on the CHU Sainte-Justine website.
- More information on epilepsy launch
Want to know more about epilepsy, from cause and symptoms to treatments and more? Here's a link to help you find out. This information is provided in French, supported by the CHU de Québec.
- Educational videos on epilepsy launch
Want to learn more about the different types of seizures (focal motor seizures, myoclonic seizures, etc.)? CHU Sainte-Justine has created educational videos (in French) to answer your questions.
- ÉPI-TAVIE launch
"A virtual intervention aimed at better understanding and managing your epilepsy." ÉPI-TAVIE
- SUDEP Aware (Sudden Unexpected Death in Epilepsy) launch
To find out more about sudden and unexpected death in epilepsy, please visit SUDEP Aware. This Canadian site is only available in English.
- SAAQ Resources launch
Are you unfamiliar with driving regulations for people with epilepsy? The Société de l'assurance automobile du Québec website provides all the information and rules for driving in Quebec.
Epilepsy associations
- Quebec Epilepsy Association (AQE) launch
"Since 1960, the Association Québécoise de l'Épilepsie has been supporting and accompanying Quebecers living with epilepsy and their loved ones, raising awareness of the condition among the general population and contributing to scientific research efforts in neurology." AQE
- Canadian League Against Epilepsy launch
"The Canadian League Against Epilepsy is an organization of social educators, advocates, medical professionals and basic scientists with over 200 members." CLAE
- Canadian Epilepsy Alliance launch
"The Canadian Epilepsy Alliance (CEA) is a pan-Canadian network of organizations dedicated to promoting independence and improving the quality of life of people living with epilepsy and their families, through support services, information and public awareness." CEA
- Epilepsy Foundation launch
"Working with the community and network partners, the foundation connects the people, data and resources needed to solve the challenging health problems associated with seizures." Epilepsy Foundation
- Epilepsy Society UK launch
"The UK's only charity transforming the lives of people with epilepsy through cutting-edge research, advocacy and care." Epilepsy society
- Épilepsie Montérégie launch
"Épilepsie Montérégie is a non-profit organization. We provide awareness, support, intervention, promotion and advocacy for people living with epilepsy and their families." Épilepsie Montérégie
Below you'll find a series of links to organizations, services and resources that our patients have found helpful in understanding your condition. If you have an additional resource that you feel would be helpful to others, please contact us and we'll add it to our list below.
Tuberus Sclerosis Complex
- TSC Canada launch
"TSC Canada is a voluntary, non-profit, volunteer organization that was established in 1990 to provide awareness and support for people with BTS and their families." TSC Canada
- TSC Alliance launch
"TSC Alliance is an internationally recognized non-profit organization that does whatever it takes to improve the lives of people with TSC." TSC Alliance
- Association Sclérose Tubéreuse de Bourneville (astb France) launch
"The association Sclérose Tubéreuse de Bourneville France (ASTB France) was founded in 1991. It is an association under the law of 1901, managed and run by volunteers." ABTB France
- CHU Sainte-Justine TSC video launch
Want to know more about TSC? CHU Sainte-Justine offers educational videos to help you better understand this condition. You can learn about genetic factors, the different manifestations (skin, heart, kidneys) and much more.
Other specific diseases
- Dravet Syndrome – Dravet Canada launch
Would you like to learn more about Dravet syndrome or find resources about this condition? We invite you to visit Dravet Canada.
- LSG Foundation (Lennox-Gastaut Syndrome) launch
"The Lennox-Gastaut Syndrome (LGS) Foundation is a non-profit organization dedicated to improving the lives of those affected by LGS by promoting research, awareness, education and family support." LSG Foundation
Below you'll find a series of links to organizations, services and resources that our patients have found helpful in understanding your condition. If you have an additional resource that you feel would be helpful to others, please contact us and we'll add it to our list below.
Community resources for patients
- Bibliosante.ca launch
"Biblio-Santé is a series of 16 thematic notebooks offering quality resources on diseases and topics of interest to users of the healthcare system and their families." Bibliosanté. Illnesses and topics covered include autism spectrum disorders, intellectual disability, mental health and family caregivers. The resources discussed are mainly those offered in the province of Quebec.
- Office des personnes handicapées du Québec launch
"The Office des personnes handicapées du Québec is a government agency that helps increase the social participation of people with disabilities." Government of Quebec
- Office des personnes handicapées du Québec - Search Tool launch
"The Office produces guides, reports, analyses, opinions, and briefs on a range of topics related to people with disabilities." Office des personnes handicapées du Québec
- Access Portal for Intellectual Disabilities - Autism Spectrum Disorder - Developmental Delays - Physical Disabilities launch
"The portal serves as a single entry point for requests related to intellectual disabilities (ID), autism spectrum disorder (ASD), developmental delays, and physical disabilities (PD), both for specific and specialized rehabilitation services, as well as for primary and secondary services." CIUSSS
- Service Request Form launch
The form can be completed by a doctor, a healthcare professional, the school, or by the user themselves. If completed by the user, the contact details of the professional who referred them to the service are absolutely necessary to ensure follow-up on the decision.
- Intellectual disability launch
Would you like to understand intellectual disabilities or consult a directory of books for caregivers? We invite you to visit this web page.
- Autism spectrum disorder launch
Would you like to understand the needs of people with autism spectrum disorders or consult a directory of books for caregivers? We invite you to visit this web page.
Epilepsy devices
- Seizure monitors and medical alert systems for the home launch
Want to know more about seizure monitors and medical alert systems? We invite you to visit this web page, supported by the Association Québecoise de l'Épilpsie.
- Nocturnal seizure detector launch
"SeizSafe is a system that tracks the sleep of people who have epileptic seizures so that their carers can take care of them even at night." SeizSafe
- NightWatch - Detection of epileptic seizures during sleep launch
"NightWatch remotely alerts caregivers to possible epileptic seizures during sleep." NightWatch
- Assistance dogs for epilepsy launch
Want to find out more about epilepsy service dogs? We invite you to visit this web page.
- Smartwatches and mobile applications dedicated to epilepsy launch
Want to know more about smartwatches and mobile applications for epilepsy? We invite you to visit this web page, supported by the Association Québecoise de l'Épilpsie.
- Connected clothing and medical identification accessories launch
Want to find out more about connected wearables and medical identification accessories? We invite you to visit this web page, supported by the Association Québecoise de l'Épilpsie.
- Anti-choking pillows launch
Want to know more about anti-choking pillows? We invite you to visit this web page, supported by the Association Québecoise de l'Épilpsie.